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Patient Inchera wishing patient Anitha on her Birthday
In-Patient Facility
Patient taken on wheel chair for a walk
Sr. Naveena doing dressing for a patient
Sr. Betty taking care of a patient
Patient sharing a light moment with the Health Assistant
Home care nurse treating a home care patient
Home care nurse taking care of a home care patient
Health Assistants Training Programme
12th Batch of Health Assistants completed their Training program successfully
Nursing Training in progress
Volunteers from Cisco Pvt. Ltd., are painting the Diyas and other stuffs
Patient taking part in Music and Dance program - part of Diversional Therapy
Volunteers from Goldman Sachs painting the Flower Pots
Sports Day for the Staff
Music program for the patients - a part Diversional Therapy
Celebrations of Diwali Festival
Waste Water Recycling plant inauguration
Mr. & Mrs. Subba Jetty inaugurating Shavantige Ward
Patient Aysha (Right)
Our Health Assistants with a young patient
Street Play in Progress
Dr. L. Subramaniam and our Managing Trustee
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Annual Review "When there's no hope for cureThere's a greater need for care"
8 Years of In-Patient Service 12 years of Home Care Service 7500 lives & families touched MANAGING TRUSTEE’S MESSAGE……… It gives me immense pride in showcasing the activities of the Bangalore Hospice Trust during the year ending 31st March 2007. Our in patient facility Karunashraya has completed 8 yrs and our Homecare facility has rendered yeoman service for 12 years. During this period our team of dedicated professionals has come a long way in achieving our objective: to put it simply, to alleviate pain- physical, psychological and spiritual, the severe damage that terminal cancer can wreak, not only on the patient but on his near and dear ones as well. Our Doctors, family counsellors, Volunteers, Nursing and administrative staff is well trained and competent. Together they form an effective support group to help the affected and his /her families cope and deal with the crisis. In the last 8 yrs, we have cared for 5713 advanced stage cancer victims at Karunashraya out of which 3243 have died peacefully and with dignity after being provided with plenty of personalized care and comfort. So also at our Homecare service, where we have cared for 1785 patients, of whom 1677 have breathed their last, again free form pain, and with dignity. The strategic planning Exercise During the year 2006-07, we had conducted a strategic planning exercise to review our working and the way forward in the next 5 years. To continue these efforts, and refocus on the next 5 years, the Trustees had a weekend planning offsite in March 2007. The programme was conducted by Dr. Jayaram of ILID. Dr Jayaram has been doing yeomen work in this area. The objective of this exercise was as follows –
The exercise has helped tremendously in that we have had a complete re look at our working, identified the shortcomings, and in the process of taking adequate steps to continue rendering quality care to our patients and their families. The Trustees have reaffirmed their commitment to achieving our Vision to –
Our goals continue to be · To alleviate pain and related symptoms. · To offer all round intensive care · To ensure quality of life at every step and to counsel the patient's family in order to give them fortitude to accept the situation. · To heighten awareness of Palliative care As always, I attribute our success to the excellent work done by our team of doctors, experienced family counsellors, nursing and administrative staff, and volunteers, who help the patients and their families cope with the trauma and pain which accompanies the disease. IN-PATIENT HOSPICE PROJECT – KARUNASHRAYA Between April 1, 2006 and March 31, 2007, we had 885 admissions (as compared to 979 in the previous year). Of these, 448 passed away at KARUNASHRAYA with diminished pain, and in peace and with dignity. The total number of discharges was 391 (485 previous year). Our patients continue to take advantage of the flexibility we offer, to alternate between their homes and the hospice. The family members are trained by our team to take care of them at home, as they often long to be at home with their near and dear ones. Our medical team, consisting of Dr. Ramanathan, our Consulting Medical Officer, Dr Reena Joy, and Dr. Manjunath together do an excellent job of caring for the patients. Sr. Alphy was recalled by the Sisters of the Holy Cross in September 2006. Sr. Alphy has been with us for the past 6 years, and those of us who shared this time at the hospice with her were indeed fortunate. Sr. Alphy was the epitome of “SERVICE” – she was one of those who literally lived for the welfare of her patients, and it was a common sight to see her running along with the stretcher as the patient was being wheeled in to the hospice, and never rested till she had given her best for them. In spite of indifferent health, she gave us her best – we miss her presence and wish her all the very best in her new assignment.. Sr. Fabiola took over as the Administrator in place of Sr. Alphy. Sr. Fabiola comes with 40 years of experience behind her in many capacities and hospitals. As we repeatedly acknowledge each year, our biggest asset continues to be our team of dedicated staff including Doctors, Nurses, Nursing Health Assistants, Counsellors, Social Workers, office and support staff and volunteers. As is evident from the nature of their duties, they face high stress levels and we do our best to organize periodic activities for them which will help divert their minds. They continue to serve with a smile, and we are grateful for their services. Of the 885 admissions, 551 (63%) were female. Over 60% of the patients came from very poor to lower middle class families. HOME CARE SERVICE The Home Care service continues its dedicated service. The number of patients attended to during the year was 189. The average number of patients under our care at any point of time remained at around 50. Sr. Vinitha, our dedicated Home Care nurse left in January 2007 to take up a new assignment with her order at Korea. Though we will miss her, we wish her all the best in her new role. Sr. Ruby, another experienced nurse, joined our services in place of Sr. Vinitha. Sr. Ruby has prior experience in working with cancer patients, and brings with her not only this experience but a highly compassionate nature. The Global Cancer Concern India continue to partly support the running expenses of the Home Care division, by contributing Rs.25,000/- per quarter. We are honoured to be supported by this organisation, who themselves do yeomen service in the field of cancer awareness and support of cancer patients. Note: Statistical data on the patient profile under age, sex, economic background, religion etc, and the types of cancer, both Home Care and at the In-Patient Facility, are represented graphically at the end of this report. HEALTH ASSISTANTS TRAINING PROGRAMME The demand for trained health assistants continues to be high. The 12th batch is in process now. Our growth plans include increasing the batch sizes progressively. In order to meet the infrastructure requirements for the increased batch sizes, expansion of the current facility has been planned and commissioned. I am happy to report that as on the date of this report, the work has begun, and the construction is expected to be completed by December 2007. The new buildings will house 2 additional dormitories and allied facilities for the Health assistants. NEW EDUCATION INITIATIVES Partnership with the Cardiff University UK for Post Graduate Training in Palliative Care – The Department of Palliative Medicine of Cardiff University UK, has been running a Post Graduate programme in palliative medicine for the past 18 years. In parts of the world where opportunities for educational advancement are scarce, the Palliative Care programme seeks to play a vital role in yielding educationalists of the future. Graduates of this programme, in many regions of the world, have established local networks and have been catalysts for change both within their own setting and, by partnership working, within the wider environment. The cascading of knowledge has enabled graduates to improve care standards for cancer, HIV/AIDS and other life-limiting diseases across their region/country. These developments have contributed to the creation of best practice standards both at local levels and in the wider palliative care community in their own countries. In short, the educational programme in Palliative Medicine/Care aims to:
In February 2007, a visiting team from Cardiff and our twin Hospice at Shrewsbury, along with our medical team, conducted the contact weekend at Karunashraya for the students of the Diploma Programme. The programme was a great success. We are proud to announce that as a result of this visit, the Cardiff University expressed their intention to increase their involvement with the Hospice, and agreed to sign an MOU with Karunashraya, for a joint programme in Palliative Care. The MOU was signed in May 2007; BHT will act as a Resource and Learning Centre for the selected candidates from India, Pakistan and other neighbouring countries. Faculty from Cardiff will run their contact programmes for these students at Karunashraya. BHT will be able to make use of their expertise in devising many short- term programmes (one to three day) for local doctors, nurses and other health care professionals. This initiative is in line with our endeavour to share our knowledge and also benefit the community at large by creating more experts in Palliative care. ROTARY INDIRANAGAR - BHT CENTRE FOR PALLIATIVE CARE EDUCATION We continue to realize the major role workshops and training programmes play in spreading the knowledge of Palliative care. We have been encouraging our Doctors and staff to attend and participate in such programmes whenever possible. A team consisting of trustees, doctors and counsellors attended the IAPC conference held at Mumbai in the month of February 2007. The next Conference is scheduled to be held in Cochin in the month of February 2008. BHT will participate with a large contingent consisting of Doctors, Nurses and Counsellors. In addition, we continue to conduct workshops and awareness sessions on Palliative care, Psychological issues involved in patient care etc., for nurses, counsellors and volunteers. In April 2006 a series of 4 lectures was conducted with the Indian cancer Society, Cancer Information and Research Foundation and Canara Union at venues across the city. These were free community meetings on cancer awareness, given by the eminent Oncologists from the Bangalore Institute of Oncology, Manipal Hospital and from Kidwai Memorial Institute of Oncology. The lectures were very well received by the public. Nursing students from various medical institutes have been regular visitors to the hospice. In January, the first Batch of Nursing students (3rd year GNM) from Manipal hospital started their training in Palliative care at Karunashraya. The objective of the training was to provide training on comprehensive care to the terminally ill patients, learn skills in therapeutic communication, sensitize to the needs of the terminally ill, value for life, Pain management, Home care of terminally ill, introduction to Palliative care and philosophy. 13th batches (batch size 10) have now completed this training. Others who have benefited from training are the Students from 1st Year B.Sc. Nursing and 1st Year GNM from Vydehi Institute of Nursing Sciences and Research centre, and also nurses from CMC Vellore, who have had a 10 day training in palliative care. SATELLITE HOSPICES Our previous report carried details of our involvement in assisting other organizations to set up Palliative care centres, by sharing our knowledge and expertise. We are happy to report that Satellite Hospices at Shimoga, Chennai, Nagpur, Puttur, and Kallianpur are all functioning independently now. Doctors, Nurses and Counsellors for all these Hospices have been trained by us at Karunashraya. We continue to act as Consultants to them in their day-to-day running problems. We have also been approached by an organization in Goa for similar help to set up a Palliative Care unit there. CMC Vellore who is setting up a Palliative care centre has requested our Managing Trustee to be on the advisory board. We are privileged to share our knowledge with others, and in the process, help the needy patients. OUR STAFF The stress levels undergone by our staff are understandably very high. We strive constantly to provide support for them through various diversional activities and also through psychological support. In January 207, we have had talks by Dr. Sabaney, Senior Psychiatrist from the Indian Air Force, and family counsellors from Prerana, and academy for growth & guidance, which have helped our Doctors, Nurses, Counsellors and Volunteers. IMPROVING OCCUPANCY AND EXPANDING HOME CARE THROUGH AWARENESS BUILDING The average occupancy during the period under review has been between 38 and 40. The maximum occupancy on a particular day has touched 47. We continue our efforts at increasing awareness through the work of the social worker who continues to educate people about the Hospice facility, and has been well accepted by the Kidwai Institute of Oncology. Her efforts have brought in 145 in-patients and 61 Home care patients during the period under review. We now have a full time social worker visiting slums and most of the primary health centers, to raise awareness of our work. This has also started yielding results. As we go to press, we are happy to announce that we are launching a “Street Play Programme” where a group of 10 artists from the Muktha Foundation, an NGO experienced in this field, will conduct 200 shows at around 80 locations, all in slums, all over Bangalore. This is a well planned and methodical exercise, by which we hope to spread our message to a large audience. These shows will be held in August and September, and will be purely an awareness building exercise. The Kidwai Institute of Oncology, The Bangalore Institute of Oncology, The Manipal Hospital, Medical practitioners and the relatives of patients continue to be our ambassadors in spreading the word about the services offered at BHT. We continue to enjoy the confidence of the above group and the public. We are particularly pleased that past patients have been recommending our care to others and this has become a source for new patients. One of our thrust areas is to reach the local population through press and TV coverage in the local vernacular. Udaya TV and Chandana TV continue to air programmes on Karunashraya, which has helped in spreading awareness of the hospice to nearby areas also. FUND RAISING INITIATIVES The twin objectives of fundraising and awareness building remain key thrust areas. A major fundraiser was planned for the 7th of October 2006, on the occasion of the “World Hospice Day” which is a world wide celebration of the hospice movement. BHT thought it fit to celebrate this day with a music concert by renowned violinist Dr. L. Subramaniam. We are happy to report that the function was a big success. The success of this initiative has motivated us to plan one such big event every year. We are grateful to Dr. L. Subramaniam for his generosity in performing free for us, and all our patrons who made the event a success. Mrs. Lalitha Rao, a well wisher, donated Rs.10.00 lakhs to the hospice on this occasion. Corporates like Cisco Systems India Pvt. Ltd., continue to help us. Their employees continue their good service by spending time with our staff and also helping in various administrative jobs. We are reaching out to more organizations to participate in a similar way. FINANCE AND ACCOUNTS The Trust received donations and other income amounting to Rs.257.33 lakhs during the year (Rs.154.49 lakhs during the previous year). This included donations under Secs.35AC and 80G of the Income Tax Act, under FCRA, interest on bank deposits, and indirect fund raising income. The breakdown of income (source-wise) is as follows: Rupees Percentage to total (Lakhs) Trusts & Foundations: 39.52 15.36% Companies: 29.35 11.41% Individuals & others: 141.75 55.08% Interest from Bank deposits & Other fund raising activities 46.71 18.15% ------------- Total: 257.33 ======== DONORS As many as 1795 (1535 previous year) donors have contributed to the income of the Trust during the year. A list of Donors who have contributed Rs. 1.00 Lakh and more is appended to this report The Sir Ratan Tata Trust and The R D Tata Trust continue to support us by part funding the operations. The grant from the R D Tata Trust for the Waste Water Recycling plant has been utilized and the system is running successfully. The entire requirements for watering the garden is being met out of the recycled water. The Trustees on their behalf and on behalf of the Cancer Patients hereby place on record their deep appreciation and grateful thanks for the invaluable support given by the Trustees of these Tata Trusts. Some Special Mentions ……. A group of CSR officials from Titan Industries Limited visited the hospice. Touched by our cause, they included BHT as one of the beneficiaries of the “Titan Run” organized by them, held on the 24th of September 2006 in support of various causes. BHT received Rs. 2.00 lakhs as a contribution from this event. The goodwill generated by the services render we continue to bring in unexpected donations – In August 2006 we received Rs 20.00 lakhs as donation from Mr. Subba Jetty in memory of his late wife, and parents. The Shaivantige ward, which is the male ward, has been dedicated to the memory of “Smt. H. R. Lalithamma Subba Jetty and H. R. Rathna” & “Shri. Bheema Jetty and Late Smt. Varadhamma” as requested by Mr. Subba Jetty, the donor. My colleagues on the Board, and I take this opportunity to thank each one of our donors – if not for their support and faith, we would not be able to render the service we have set out to do. TWIN HOSPICE We have received the best of support from our two Twin hospices in England – The Severn Hospice at Shrewsbury and St. Joseph’s Hospice, London. Our volunteers continue to be one of our major strengths. They continue to support us with enthusiasm, in various areas VOLUNTEERS Our volunteers continue to be one of our major strengths. They continue to support us with enthusiasm, in various areas of our work, like counseling patients and their families, managing some of the home care patients, helping with office work, spending time with patients at KARUNASHRAYA, and teaching patients various crafts to arranging awareness programmes, making contacts with potential donors, editing our Newsletter and organizing our library and Pharmacy. The Trustees and staff extend their heartfelt gratitude to each and every one of these volunteers. It is with deep regret that we announce the sad demise of one of our dedicated volunteers, Ms. Alamelu Gopinath. Alamelu was a professional story teller and regaled our patients and staff with stories as part of our diversional therapy program. The trustees and staff wish to place on record her contributions and offer heartfelt condolences to her family. We also wish to acknowledge the contribution made by volunteers from various corporate houses, who have put in their valuable time in helping us with various activities. TRUSTEES Mr. Suresh Hari was appointed Ex-Officio Trustee in July 2006 on his appointment as the President of Rotary Club of Bangalore Indiranagar in place of Mr. Harpreet Singh Rana. Mr. Ajith Kumar Rai was appointed trustee in July 2006 in place of Mr. Shirish Mathur. Dr. Mary Ollapally, chief of Medical Services, St. Johns National Academy Health Science was appointed Trustee in October 2006. IMPORTANT EVENTS Our seventh memorial day, dedicated to our patients, past and present, was celebrated on May 1st 2006. ACKNOWLEDGEMENTS We are grateful to each and every one of our donors who have made it possible for us to continue our services to those in need. Our grateful thanks to Dr Ramanathan, who continues to render honorary service at the hospice. Our patients and our medical staff continue to benefit tremendously from his experience. We are grateful for the referrals we get from medical practitioners, the Kidwai Memorial Institute of Oncology, The Bangalore Institute of Oncology and Manipal Hospital, and the relatives of our patients. By reaffirming their faith in us, they have helped us serve many more deserving patients Kishore S. Rao Managing Trustee MADE WHOLE BY LOVE AND CONCERN Do you believe in “Providence of God?” Well, it was this “Providence” that brought me to Karunashraya after Nursing for 5 years in a Cancer Hospital in Kerala. It was like a “Dream Come True” having been trained to take care of cancer patients and today being privileged to be a Home Care Nurse at Karunashraya. What did I feel when I was told by my superior that I was replacing Sr. Vinitha? My heart skipped a beat as joy and happiness filled me. A sense of anticipation and satisfaction, that now I can put my training to good use with the same people whom I cared and loved, for the past 5 years. Suddenly a feeling of fear also came over me and I felt cold…Will I be able to handle the care of these patients alone as a home care nurse? I was moving from a controlled nursing situation to a place where I would have to work alone. I turned to God in prayer and said “Help me”. "Help me”.... He did as I found myself with a team of experienced, caring people in Karunashraya who believed in the motto "When there is no hope for cure there is a greater need for care. "Care and love". I found in abundance in the home care team of Bindu, Shekar and Raju. * Life is a reality * Death is a certainty * Suffering is inevitability. This is an understood fact of life but though suffering is inevitable and must come in one form or another, it is a shattering, fearful and painful experience when it comes in the form of `Cancer'. * Why me? * Why is so cruel to me? * Why am I being punished when I have been good and honest in my life? * Is this the way I must meet my end when I am so young? Can any one answer such questions? I was flooded with them and suddenly I found answers. Answers that came from Karunashraya itself. All the answers were in our smile, our cheerfulness our tender loving care. Relief from physical and mental pain came from our nursing, counseling skills and care. Our love.......which is I believe is the foundation of Karunashraya showed to all patients and made them quieten down and get ready and prepared to meet their end. The other day I entered a home and was shocked to find Sudha lying in a cold staircase, where her family had abandoned her, all because her wounds smelled and the family believed they were contagious. I found her suffering not only from physical pain but also with a mental agony as both her children whom she had so lovingly brought up, had today rejected her due to no fault of hers. Lonely rejected and abandoned she crouched in the cold stair case writhing in pain. I cleaned, washed and treated her wounds with care and love and suddenly I saw a relief, a peace and she reached out to me in love and said in sadness, “Sister, my son or daughter should have done this for me instead of you". Sadness came over me but also a sense of joy as she had taken me as a daughter. Do you think in the midst of this suffering I can become hard hearted as I continue to see patient after patient? Many people say this of nurses? But this is not true. As human as I am I too get disturbed; distressed and at times burst into tears. But the warmth, the concern and the comfort I receive from our Home care learn and patients make me heal and I move on to care for those who are in need. I remember Ram, who gave me just this concern. A boy of 16 with painful bone cancer who died shortly after my visit said to me "Sister do take care of yourself too. Have you had food? You need to be strong." Love and concern emerged out of his little heart. Tears came to my eyes when he passed away and I realized that those were his last words to me. This little innocent 16 year old was able to come above his physical pain and reach out to me in love and give me the care that I too needed. Yes, it is heart breaking for me to see those whom we care have left us and said "BYE". But as I go on I know that there are others in need that is waiting to say "Hello". Daily I take my sorrows, pains and patients to God in prayer and am recharged, to care, to love and to give relief the next day. I start the new day cheerfully knowing that these suffering cancer patients are making me "WHOLE'. Yes, Karunashraya and the work I do are making me whole. Thanks to Mr. Kishore Rao, the Medical Team, Co-workers and Homecare Team of Karunashraya for this; I thank my sisters of my congregation too for supporting me and being there for me.... Thank you...... Sr. Ruby Care OP MY LIFE AT KARUNASHRAYA Initial few months of the year 2007, wasn’t quite good for me. The reason being that I had experienced the worst pain of my life during this period. It was at this time that my uncle (Dr. Shariff) saw me struggling with pain. He then spoke to my first surgeon (Dr. M.G. Bhat) who in turn recommended us to get me admitted to “KARUNASHRAYA”. This institution provides Palliative care to the Patients like me, so that we can live in peace for the rest of our life. In fact, they also help the Patients to be free of pain. After learning few facts of Karunashraya, I got admitted into this institution on 8th May, 2007. My condition was quite pathetic when I got into this place. I was struggling with lot of pain. I had too much of vomiting as well. But after staying at Karunashraya, I began to feel much better. Just been surrounded by nature, listening to birds chirping throughout the day and watching all the beautiful fishes in the ponds created a magical change in me. It is true that the nature itself is the greatest stress burster and I truly regret for not having come to Karunashraya much earlier. Had I come to this place much before, I wouldn’t have gone through all the pain and agony which I experienced for the past few months. Karunashraya has surely been a blessing in disguise for me. All the Doctors, Sisters and the rest of the Staff members took care of me with lot of love and affection. Everybody were completely dedicated to their duties and I truly appreciate their efforts. Communicating with various Counsellors of this institution, made me feel good too. Here, at Karunashraya, my day begins by listening to the beautiful birds chirping all around this place. Music of nature helps me start my day with peace. Later on, I sit near the pond and watch all the lovely fishes swimming all the way from one end to another. Then I read Quran for sometime. I also do various other activities throughout the day, like listening to music, watching TV, read some books, do some craft work and chat with people coming to me. In fact, I spend most of my time with my dear mother, who has been my caretaker throughout my life. Some times, in the evening, the trainee girls out here take me for a stroll in a wheel chair and let me enjoy the fresh air overwhelming the garden of this institution. At times, few of my friends and relatives come to visit me and I feel extremely happy to spend time with them. Truly, Karunashraya is the best place for any terminally ill patients. In fact, I feel, as though I have come to a resort to spend my holidays rather than a care taking institution or a hospital. Some times, I really forget that I am a Cancer patient. As the saying goes, “There ain’t much fun in medicine but there is a hell of a lot of medicine in fun”. The staffs at Karunashraya is also trying to follow this saying, by giving all the comforts to the patients. In fact, they try to fulfill even the minute desire of the patients, as much as possible. I am indeed blessed to spend some valuable time of my life at “Karunashraya”! Miss Aysha Fazl Written June ‘07 Expired August ‘07
BOARD OF TRUSTEES Dr. S. N. Simha Chairman Mr. Kishore S. Rao Managing Trustee Mrs. Kala Devarajan Treasurer MEMBERS Mr. Ajith Kumar Rai Mr. P. J. Bagilthaya Mr. G. M. Row Dr. Latha Jagannathan Dr. Sunita Maheshwari Dr. Mary Ollapaly Sister (Dr.) Aquinas Mr. Gurmeet Randhawa Mr. Mohammed Jamal Mr. Suresh Hari
CANCER PATIENTS NEED OUR HELP AND WE NEED YOURS
How you can help? With the generous support of corporate and individual donors, we have been able to provide home care and in-patient care to over 7,500 patients and their families. The annual operating costs will be in the region of Rs. 80.00 lakhs next year.
Where does the money go? The major items of expenditure are home care, medicines, food, salaries for staff and maintenance of the complex. All services to our patients are completely free of charge.
The breakdown of expenses is as follows:
We welcome contributions, big and small, towards meeting these costs. All contributions are eligible for tax exemption under the following sections of the Income Tax Act: Sec.80G (50% deductible) and Sec.35AC (100% deductible). We also welcome volunteer services. Come and visit us and tell your friends about the services we can offer.
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Bangalore Hospice Trust Date___________ KARUNASHRAYA, Airport-Varthur Main Road, Kundalahalli Gate, (Tick and strike-off Marathahalli, Bangalore - 560 037 as applicable below)
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"When there's no hope for cureThere's a greater need for care" |
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| Karunashraya Bangalore Hospice Trust Airport-Varthur Main Road Marathahalli Bangalore-560 037, India Tel: 91-80-28476133 / 28476509 Fax: 91-80- 28476201 Email: karunashraya@vsnl.com |
Bangalore Hospice Trust ( A Public Charitable Trust of the Indian Cancer Society and Rotary Club of Bangalore Indiranagar ) |
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